Supports InfoPak

Author: Richard Duncan
The Center for Universal Design
North Carolina State University

INTRODUCTION

People with disabilities often have limited choice about where and with whom they live, and who provides their support. Because of limited income, lack of affordable accessible housing, and attitudinal and legal barriers, people with disabilities have been relegated to large state facilities, community residences, adult foster care, or their families' homes. Frequently, a state or local agency has made housing and support decisions, usually owning or leasing the place where an individual lives, and choosing and hiring staff to provide a range of support services. If individuals choose to live in their own apartment or own their own home, they may have great difficulty in gaining or continuing services and supports. Families, friends, advocates, and organizations may not know how to begin to assist individuals to become part of their community. They may be confused by benefits, how to arrange personal assistance services, or how to craft a trust to help individuals with a disability live on his own.

The U.S. Administration on Developmental Disabilities and state Developmental Disabilities Councils throughout the country have made home ownership a top priority. This publication lists resources for creating person-centered and person-controlled supports for people with developmental and other disabilities.

A companion volume, the Housing InfoPak, provides information and contacts for people owning their own homes, along with many other resources on community inclusion.

National Home of Your Own Alliance

The National Home of Your Own Alliance was created as a national information and technical assistance center - a place to get direction and information about home ownership and control for people with disabilities. The Alliance is funded by the U.S. Administration on Developmental Disabilities through a cooperative agreement with the Institute on Disability at the University of New Hampshire.

A "person-owned and controlled home" is one that an individual, not other people or agencies, chooses and controls. The owner or occupant selects his or her own apartment, condominium, duplex, co-op share, or single-family home. The individual, with the necessary supports, obtains financing, signs the lease or deed, and makes the long term commitment to pay the rent or mortgage payment. In addition, the person chooses whether to live alone or with housemates. The individual chooses his or her housemate(s), if any, the services he or she uses, and hires his or her own staff. This relatively new idea is a logical extension of supported living and one that the National Home of Your Own Alliance promotes. Currently, there are a number of barriers to home ownership and control for people with disabilities. In addition to income and financing limitations, restrictions on the availability of independently contracted and arranged supports can prevent people from living on their own. Attitudinal barriers that prevent individuals from controlling their own homes include the notion that people can't hire service providers, aren't capable of living on their own, and can't direct and control a support and service plan. The Alliance is working to help people overcome these barriers.

Members of the Alliance provide technical assistance at national, state, and local levels to change policies and practices that prevent people from having their own homes. Each state has a steering committee that receives technical assistance from the Alliance. Typically, the steering committee includes people with disabilities, representatives of the banking industry, advocacy organizations, and affordable housing and disability groups. These state committees decide how to help more people own and control their housing.

Who Can Use this InfoPak?

The InfoPak is intended as a reference for individuals with disabilities, family members, advocates, and professionals who are seeking resources on supports and person-centered planning. Use this InfoPak as a starting point for a search. Remember that offices move and phone numbers change; it may be necessary to try several times to get the correct office or person. If an organization, publication, video, or other resource has been helpful, please fill out the form at the back of the InfoPak and return it to The Center for Universal Design at North Carolina State University.

The InfoPak

The InfoPak focuses on supports and person-centered planning and is divided into three sections:

• General Resources
  
• Person-Centered Planning
  
• Personal Assistance

The resources included in the InfoPak are government agencies, private non-profit organizations, and other groups and publications. Some of the organizations listed have both national and state-level offices or affiliates. Where appropriate, the national office is listed as a source for state or local office phone numbers and addresses.

Each organization listed has information to contribute to a particular aspect of the effort. If they are unfamiliar with a question, take the opportunity to educate them. Have the organization contact the Alliance at the Information and Referral Center. For questions about home ownership, home financing, and other resources, refer to our Housing InfoPak.

GENERAL RESOURCES

Information & Referral Center Toll Free Hotline

National Home of Your Own Alliance

c/o The Center for Universal Design
NC State University
P.O. Box 8613
Raleigh, NC 27695-8613
Toll-free InfoLine: 800-220-8770
Fax: 919-515-3023
Web Site: http://alliance.unh.edu

The National Home of Your Own Alliance supports a toll-free Information and Referral phone line. The information specialists provide information about the National Home of Your Own Alliance and its activities. Technical assistance on accessible and universal design and home modifications is also available through the InfoLine. Publications produced by the National Home of Your Own Alliance are disseminated through the Information and Referral Center. Contact the Alliance for a publications list. The Web page outlines Alliance activities and offers timely information on current issues and funding possibilities. The Web page also allows the viewing and downloading of all Alliance publications.

National Organizations

The following national organizations may be able to answer questions over the phone and can serve as valuable resources for Home of Your Own initiatives. Some organizations have produced publications relevant to person-owned and controlled housing. Please call them with questions or write to request a list of their publications.

The Arc of the United States, National Headquarters

500 East Border Street, Suite 300
P.O. Box 1047
Arlington, TX 76004
Toll-free InfoLine: 800-433-5255
Phone: 817-261-6003
TDD: 817-277-0553
E-mail: thearc@metronet.com
Web Site: http://www.thearc.org/

The Arc is an association that works on the national, state, and local levels to promote services, research, and public understanding for individuals with mental retardation. They provide general information, can refer inquiries to the state and local Arc's throughout the country, and have an extensive publications list.

Atlantis Community, Inc.

12 Broadway
Denver, CO 80203
Phone: 303-733-9324
Fax: 303-733-6211

Atlantis is a twenty-one year old non-profit independent living center that engages in advocacy, housing development, affordable home ownership, and service provision. While providing services to people in the Denver area, Atlantis will also respond to questions from people around the country regarding their areas of focus.

Center on Human Policy

National Resource Center on Community Integration
Syracuse University
805 South Crouse Avenue, Room 101
Syracuse, NY 13244-2280
Phone: 315-443-3851
TDD: 315-443-4355
Fax: 315-443-4338
E-mail: thechp@sued.syr.edu
Web Site: http://thechp.syr.edu/

The Center on Human Policy at Syracuse University, through its National Resource Center on Community Integration, distributes a variety of reports and resources concerning the integration of people with severe disabilities into community life. Call or write for a complete list of publications.

Connections for Information and Resources on Community Living (CIRCL)

P.O. Box 1168-881
Studio City, CA 91604
Phone/Fax: 818-752-7484
Web Site: http://www.allenshea.com/CIRCL/CIRCL.html

CIRCL's mission is to create opportunities for building and sharing individual, organizational, and community strengths in supported living. CIRCL creates opportunities through mentoring, developing networks, training, and information dissemination.

Institute on Community Integration (UAP)

University of Minnesota
109 Pattee Hall
150 Pillsbury Drive, SE
Minneapolis, MN 55455
Phone: 612-624-4512
Fax: 612-624-9344
Web Site: http://ici.umn.edu/default.html

The mission of the Institute on Community Integration (UAP) is to improve the quality and community orientation of professional services and social supports available to individuals with disabilities and their families. Contact the Institute for technical assistance or to request a publications list.

National Association of State Directors of Developmental Disabilities Services (NASDDDS)

113 Oronoco Street
Alexandria, VA 22314
Phone: 703-683-4202
Fax: 703-684-1395

The Association furnishes member states with a steady stream of information about the latest developments in congressional legislation, federal regulations, and litigation affecting programs for persons with developmental disabilities. The Association also represents the views of state MR/DD program officials within the halls of Congress and among federal agencies.

The Association publishes the Community Services Reporter, a monthly newsletter that is an excellent source for current information.
Annual subscriptions cost $95.00.

National Council on Independent Living (NCIL)

2111 Wilson Blvd., Suite 405
Arlington, VA 22201
Phone: 703-525-3406
TDD: 703-525-3409
Fax: 703-525-3407
E-mail: ncil@tsbbs02.tnet.com

The National Council on Independent Living is the national membership association of centers for independent living and people with disabilities. NCIL is a cross-disability national grassroots
organization run by and for people with disabilities. NCIL's mission is to promote a national advocacy agenda that advances the full integration and participation of persons with disabilities in society.

NCIL sponsors a national conference that focuses on independent living and issues facing people with disabilities. NCIL is a co-sponsor of IL NET which provides training and technical assistance on issues central to independent living today. IL NET training activities are conducted conference-style, via long-distance communication, and through widely disseminated print and audio materials on issues related to centers for independent living.

NCIL refers inquiries to local independent living centers and provides information on national policy developments that affect people with disabilities. Contact NCIL for information on IL NET, membership, or to receive a quarterly newsletter.

The President's Committee on Mental Retardation (PCMR)

U.S. Department of Health and Human Services
Administration for Children and Families
Hubert H. Humphrey Bldg., Room 352G
200 Independence Avenue, SW
Washington, DC 20201-0001
Phone: 202-619-0634
Fax: 202-205-9519
E-mail: tlion@acf.dhhs.gov
Web Site: http://www.acf.dhhs.gov/programs/pcmr/

The PCMR acts in an advisory capacity to the President and the Secretary of Health and Human Services on matters relating to programs and services for persons with mental retardation. Since 1974, the Committee has organized national planning, stimulated development of plans, policies and programs, and advanced the concept of community participation in the field of mental retardation.

The Committee conducts forums and has numerous publications that address the field of mental retardation including the needs, interests, concerns, and quality of life experienced by citizens with mental retardation. Request PCMR's extensive publications list.

TASH

29 West Susquehanna Avenue, Suite 210
Baltimore, MD 21204
Phone: 410-828-8274
TDD: 410-828-1306
Fax: 410-828-6706
Web Site: http://www.tash.org/

A membership organization of people with disabilities, families, friends, professionals, and service providers that seeks to ensure an autonomous and dignified lifestyle for all people with severe disabilities. TASH provides information and referral services. They provide referrals to regional and local TASH chapters throughout the country.

United Cerebral Palsy Associations (UCPA)

1522 K Street, NW, Suite 1112
Washington, DC 20005
Toll-free InfoLine: 800-872-5827
Phone: 202-842-1266
Web Site: http://www.ucpa.org

UCPA has a national network of over 170 local affiliates throughout the United States. The national office's toll-free phone line provides information and referral on legislative and advocacy issues and services throughout the country.

World Institute on Disability

510 16th Street, Suite 100
Oakland, CA 94612-1502
Phone: 510-763-4100
TDD: 510-208-9493
Fax: 510-763-4109

The World Institute on Disability is a non-profit public policy center dedicated to the promotion of independence and full inclusion in society of people with disabilities. Contact the Institute for information and a publications list.

Publications

The following publications offer information and resources across the broad range of issues related to personal supports.

Housing, Support and Community: Choices and Strategies for Adults with Disabilities

$32.00

Julie Ann Racino, Pamela Walker, Susan O'Connor, and Steven Taylor, eds. Baltimore, MD: Paul H. Brookes Publishing Co. 1993. 394 pp. (The Community Participation Series, Volume 2)

The book demonstrates the importance of people with disabilities having control over their lives by discussing various approaches to support, life planning, choices, and decision making within the context of housing.

Life in the Community: Case Studies of Organizations Supporting People with Disabilities

$30.00

Steven J. Taylor, Robert Bogdan, and Julie Ann Racino, eds. Baltimore, MD: Paul H. Brookes Publishing Co. 1991. 304 pp. (The Community Participation Series, Volume 1)

The book contains comprehensive case studies organized around three themes: families, housing, and the role of the community in integration. It provides practical ideas, applications, and strategies to promote successful community integration for people of all abilities.

The book combines thoughtful research and provocative first-person accounts to illustrate how natural supports work. It supports the position that assistance must be defined by the needs of individuals rather than the requirements of service systems. Included is a chapter by Jay Klein, titled "Get Me the Hell Out of Here," which discusses natural supports for people living in their own homes.

These books and others are available from:

Paul H. Brookes Publishing Company
P.O. Box 10624
Baltimore, MD 21285-0624
Toll-free: 800-638-3775
Call or write for a complete catalog.

IMPACT: Feature Issue on Supported Living

*Free

Institute on Community Integration. Minneapolis, MN: Institute on Community Integration. 1995. 28 pp. * additional copies $2

Special issue newsletter on supported living including
recommendations for agency-wide change.

Available from:

Institute on Community Integration (UAP)
Publications Office, University of Minnesota
109 Pattee Hall
150 Pillsbury Drive, SE
Minneapolis, MN 55455
Phone: 612-624-4512
Fax: 612-624-9344
Web Site: http://ici.umn.edu/default.html

Members of Each Other: Building Community in Company with People with Developmental Disabilities

$12.00

John O'Brien and Connie Lyle O'Brien.
Toronto, Canada: Inclusion Press. 1996. 140 pp. * $3 shipping

An inspiring collection of essays and reflections exploring how communities can be regenerated when everyone is included in the process.

Available from:

Inclusion Press
24 Thome Crescent
Toronto, Ontario, Canada M6H 2S5
Phone: 416-658-5363
Fax 416-658-5067
E-mail: 74640.1124@compuserve.com
Web Site: http://www.inclusion.com/

Publications by Staff and Associates of the Center on Human Policy

free

National Resource Center on Community Integration. Syracuse, NY:
National Resource Center on Community Integration. 1996. 7 pp.

The publications list includes books, articles, chapters, and reviews that discuss many critical issues for people with disabilities. Issues range from newborns at risk to generational experiences.

The listing includes numerous information packages, site visit reports, resource materials, news bulletins, journal articles, and studies on the integration of people with disabilities into community life.

These two and others available from:

Center on Human Policy
National Resource Center on Community Integration
Syracuse University
805 South Crouse Avenue, Room 101
Syracuse, NY 13244-2280
Phone: 315-443-3851
TDD: 315-443-4355
Fax: 315-443-4338
E-mail: thechp@sued.syr.edu
Web Site: http://thechp.syr.edu/

Putting People First

free

The President's Committee on Mental Retardation. Washington, DC:
The President's Committee on Mental Retardation. 1994. 198 pp.

This details the proceedings of the Presidential Forum that presents a new vision for people with mental retardation in the areas of health care, welfare, long term care, housing, education, and employment.

The publication contains the technical proceedings of the 1995 National Collaborative Academy on Mental Retardation. Information is provided to assist in the team-building efforts of traditional and non-traditional stakeholders who play key roles in assuring services and supports for
citizens with mental retardation in state and local programs.

These two books available from:

The President's Committee on Mental Retardation (PCMR)
U.S. Department of Health and Human Services
Administration for Children and Families
Hubert H. Humphrey Bldg., Room 352G
200 Independence Avenue, SW
Washington, DC 20201-0001
Phone: 202-619-0634
Fax: 202-205-9519

The publication contains information on programs and materials that address various aspects of community living. The listing is updated periodically to reflect new organizations and publications.
Order #30-28

Available from:

The Arc of the United States
National Headquarters
500 East Border Street, Suite 300
P.O. Box 1047
Arlington, TX 76004
Toll-free InfoLine: 800-433-5255
Phone: 817-261-6003
TDD: 817-277-0553
E-mail: thearc@metronet.com

The Whole Community Catalogue

*15.00

David Wetherow/Communitas. Winnipeg, Canada: Gunnars & Campbell. 1992. 128 pp. * $2.00 shipping and handling

A source book for enriching our communities, neighborhoods, schools, work places, associations, and families through full participation and inclusion of people who have disabilities. A collection of essential articles, ideas, reviews, and connections. Included are resources on relationships, education, vocations, training, networks, periodicals, catalogues, and housing.

Available from:

Communitas, Inc.
730 Main Street
Manchester, CT 06040
Phone: 203-645-6976

PERSON CENTERED PLANNING

Whether referred to as individualized planning, personal futures planning, lifestyle planning, or person-centered planning, this approach to assisting people to live full and self-determined lives begins and ends with an individual's preferences. Part of a person-centered approach may include a small group of friends or circle of support who commit to assisting an individual achieve his or her housing, work, recreation, or other life objectives. The organizations and publications listed below are resources for information and assistance about person-centered planning and will offer guidance and direction.

Organizations

Communitas, Inc.

Communitas provides networking and educational materials, conducts seminars and conferences, and spearheads creative projects concerning the full participation of children and adults with disabilities in community life.

Inclusion Press

Inclusion Press is a small, independent press striving to produce readable, accessible, user friendly books and resources about full inclusion in school, work, and community.

Minnesota Developmental Disabilities Council

The Minnesota Developmental Disabilities Council provides national information and referral and technical assistance in the areas of community inclusion, person-centered planning, and leadership training.

Peak Parent Center, Inc.

Peak provides training to assist families of children with disabilities and to assist the educators, doctors, and other professionals who work with them. Their primary intent is to assist parents to assist their children. Peak is a non-profit resource center that supports families and individuals with a variety of disabilities.

Publications

Beth Mount, Pat Beeman, and George Ducharme. Manchester, CT: Communitas.

What are We Learning about Circles of Support?: A Collection of Tools, Ideas and Reflections on Building and Facilitating Circles of Support. 1988. 30 pp.

What are We Learning about Bridge-Building?: A Summary of a Dialogue Between People Seeking to Build Community for People with Disabilities. 1988. 21 pp.

One Candle-Power: Building Bridges to Community Life. 1989. 45 pp.

Imperfect Change: Embracing the Tensions of Person-Centered Work. 1990. 36 pp.

Dare to Dream: An Analysis of the Conditions Leading to Personal Change for People with Disabilities. 1991. 50 pp.

Person-Centered Development: A Journey in Learning to Listen to People with Disabilities. 1991. 50 pp.

Communitas, Inc.
730 Main Street
Manchester, CT 06040
Phone: 203-645-6976

The book describes systems change strategies and action steps to create effective individualized supports. The text guides professionals and advocates through the critical steps that will ensure effective implementation of individualized supports. The authors demonstrate how to create collaborations and partnerships using positive futures planning and quality assurance. In-depth examples show the various ways it can happen.

Paul H. Brookes Publishing Company
P.O. Box 10624
Baltimore, MD 21285-0624
Toll-free: 800-638-3775
Call or write for a complete catalog.

Circles of Friends: People with Disabilities and Their Friends Enrich the Lives of One Another

$11.95

Robert & Martha Perske. Nashville, TN: Abingdon Press. 1988. 94 pp.

Through compelling personal stories, the book shows how the basic human relationships of making friends, being friends, and caring for one another can make our mutual inter-dependency a part of all our lives.

Perske demonstrates in this book that persons with disabilities are capable of being part of community life.

These books and others are available from:

Abingdon Press
201 Eighth Avenue South
Nashville, TN 37202
Toll-free: 800-251-3320

This comprehensive resource package on supported living includes examples of agencies around the country that are successfully implementing a supported living approach with a discussion of related issues, such as housing and person-centered planning.

Available from:

Center on Human Policy
National Resource Center on Community Integration
Syracuse University
805 South Crouse Avenue, Room 101
Syracuse, NY 13244-2280
Phone: 315-443-3851
TDD: 315-443-4355
Fax: 315-443-4338
Web Site: http://thechp.syr.edu/
E-mail: thechp@sued.syr.edu

The short booklet describes the foundation for person-centered planning and its potential for creating a better future for people, as well as influencing change. It also addresses controversies and fears associated with this new approach. A bibliography is included.

Pennsylvania Office of Mental Retardation
P.O. Box 2675
Harrisburg, PA 17105-2675
Phone: 717-787-3700

For parents and advocates who doubt whether to champion their child's cause, the story of Judith Snow and her Joshua committee demonstrates that love and determination will convert insurmountable barriers into conquerable challenges and vulnerability into strength.

What's Really Worth Doing & How To DO IT!

*$12.00

Judith Snow. Toronto, Canada: Inclusion Press. 1994. 71 pp. * $3 shipping

A book for people who love someone labeled disabled ­ possibly yourself. The book is useful for college courses, too.

All you wanted to know about Circles, MAPS and PATH in a short collaborative booklet. It is a perfect companion booklet for conferences and workshops.

A must for anyone using PATH (Planning Alternative Tomorrows with Hope). The workbook is a creative planning tool for use by individuals, families, or organizations and is a companion to the PATH training video (also available from Inclusion Press).

These books and others are available from:

Inclusion Press
24 Thome Crescent
Toronto, Ontario, Canada
M6H 2S5
Phone: 416-658-5363
Fax 416-658-5067
E-mail: 74640.1124@compuserve.com
Web Site: http://www.inclusion.com/

The book explains personal futures planning and offers direction on structuring a planning process. It discusses a capacity-search process, building circles of support, and principles of networks. The publication explores changing service systems along with a candid discussion of the pitfalls to avoid in the planning process. Stock Number: #5-8. Ask for copies of their extensive publications list.

Single copies available from:

Minnesota Governor's Planning Council on Developmental Disabilities
300 Centennial Office Building
658 Cedar Street
St. Paul, MN 55155
Phone: 612-296-4018
Fax: 612-297-7200

Minnesota's Bookstore
117 University Avenue
St. Paul, MN 55155
Toll-free: 800-652-9747, non-metro Minnesota, only.
Phone: 612-297-3000 in the metropolitan twin cities area and out-of-state callers.

PERSONAL ASSISTANCE

For many people, personal assistance services are a key link to maintaining home ownership or controlling one's home through a lease. Arranging personal assistance services, from hiring and managing individuals to evaluating providers, can be a challenging process. The organizations listed below refer inquiries to state or local level resources. Extensive publication lists offer additional information.

Organizations

ADAPT

American Disabled for Attendant Programs Today
National Headquarters
P.O. Box 9598
Denver, CO 80209
Phone: 303-333-6698
Web Site: http://adapt-now.com/home

ADAPT promotes federal funding of in-home support services for people with disabilities and the elderly in an effort to decrease the number of people in nursing homes. There are state and local chapters scattered throughout the country. ADAPT will provide information regarding attendant services, in-home supports, and funding.

Independent Living Research Utilization (ILRU) Research & Training Center on Independent Living at The Institute for Rehabilitation and Research (TIRR)

2323 S. Shepherd, Suite 1000
Houston, TX 77019
Phone: 713-520-0232
TDD: 713-520-5136
Web Site: http://www.bcm.tmc.edu/ilru/

ILRU was established to improve the management effectiveness in independent living centers (ILC's) throughout the country through research and training. The center provides technical assistance and publications including The Directory of Independent Living Programs, which lists ILC's nationwide. The directory is updated monthly. Call to obtain the name, address, and phone number of the nearest independent living center.

Center on Human Policy

National Resource Center on Community Integration
Syracuse University
805 South Crouse Avenue, Room 101
Syracuse, NY 13244-2280
Phone: 315-443-3851
TDD: 315-443-4355
Fax: 315-443-4338
E-mail: thechp@sued.syr.edu
Web Site: http://thechp.syr.edu/

See organizational description in General Resources section.

National Council on Independent Living (NCIL)

2111 Wilson Blvd., Suite 405
Arlington, VA 22201
Phone: 703-525-3406
TDD: 703-525-3409
Fax: 703-525-3407
E-mail: ncil@tsbbs02.tnet.com

See organizational description in General Resources section.

United Cerebral Palsy Associations (UCPA)

1522 K Street, NW, Suite 1112
Washington, DC 20005
Toll-free InfoLine: 800-872-5827
Phone: 202-842-1266
Web Site: http://www.ucpa.org

See organizational description in General Resources section.

World Institute on Disability

Research and Training Center on Personal Assistance Services
510 16th Street, Suite 100
Oakland, CA 94612-1502
Phone: 510-763-4100
Fax: 510-763-4109
TDD: 510-208-9493

The overall objective of the Personal Assistance Services Division is to further understand how personal assistance services systems design can better promote economic self-sufficiency, independent living, and full integration of people of all ages and disabilities into society. Contact the Research and Training Center on Personal Assistance Services for information on research, training activities and ask for a publications list.

Publications

Assistance with Integrity: The Search for Accountability and the Lives of People with Developmental Disabilities

$3.35

Addressing issues of support for people who rely on service providers for 24-hour assistance, the publication discusses concerns about such issues as safety, quality, and the potential for abuse.

A Checklist for Evaluating Personal Assistance

$2.00

The booklet provides a way of evaluating the effectiveness of policies and programs providing personal assistance services by looking at dimensions such as availability, comprehensiveness, and participant control.

These books and others are available from:

Center on Human Policy
National Resource Center on Community Integration
Syracuse University
805 South Crouse Avenue, Room 101
Syracuse, NY 13244-2280
Phone: 315-443-3851
TDD: 315-443-4355
Fax: 315-443-4338
Web Site: http://thechp.syr.edu/
E-mail: thechp@sued.syr.edu

The Personal Care Attendant Management Manual: Meeting the Challenge of Independent Living

free

A comprehensive guide to the nuts and bolts of managing the people who come into an individual's home to assist. Topics include evaluating needs, advertising, screening and interviewing candidates, checking references, and training employees. The publication includes numerous helpful forms and checklists that may be copied for personal use.

Available from:

Center for Accessible Living
981 South Third Street
Louisville, KY 40203
Phone: 502-589-6620

Personal Perspectives on Personal Assistance Services

$5.00

A collection of personal essays, the publication explores a wide range of perspectives on personal assistance services. It addresses family issues and concerns of people with various disabilities, ages and minority groups.

Personal Assistance Services: A Guide to Policy and Action

$50.00

The guide is a collection of resources addressing public policy issues related to personal assistance services for advocates, policy makers, providers, and users. Combining research with policy analysis, the guide is presented in a loose-leaf notebook format for easy insertion of new material.

These books and others are available from:

World Institute on Disability
Research and Training Center on Personal Assistance Services
510 16th Street, Suite 100
Oakland, CA 94612-1502
Phone: 510-763-4100
TDD: 510-208-9493
Fax: 510-763-4109

Videos

Personal Assistance Services (PAS): People with Disabilities Forging Public Policy

$20.00

The video offers an excellent introduction to PAS by addressing it as an independent living and civil rights issue. The film features perspectives from a diverse group of disability advocates across the U.S. and Europe.

World Institute on Disability Research and Training Center on Personal Assistance Services
510 16th Street, Suite 100
Oakland, CA 94612-1502
Phone: 510-763-4100
TDD: 510-208-9493
Fax: 510-763-4109

RESOURCES FOR UPDATES TO INFOPAK

Every attempt has been made to verify the information contained in this InfoPak. Please help keep the information accurate by communicating changes or corrections through the Information & Referral Center toll-free InfoLine: 800-220-8770, or by writing or faxing to:

If there is a resource or organization that has been particularly helpful, please list it below and return this form to the Alliance at the address above.

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